Chronic Illness

182 Pins
 3y
Vaccines, Freedom, and Loss of the Pandemic Cocoon by Emily Filmore "I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck” at home, to whatever extent you were." #myositisLife #Covid19 #myositis Vaccine, Walking Pneumonia, Sinusitis, Sinus Infection, Chronic, Supportive, Pandemic, Loss, Understanding
Vaccines, Freedom, and Loss of the Pandemic Cocoon by Emily Filmore
Vaccines, Freedom, and Loss of the Pandemic Cocoon by Emily Filmore "I hope by telling my story it helps to normalize that it is okay to be scared, to even miss the time of being “stuck” at home, to whatever extent you were." #myositisLife #Covid19 #myositis
Lisa Sniderman’s The Grieving Project: healing art when the nation needs it. Art, People, Visual Art, Digital Book, Affliction, Denial, Lisa, The A Team
Lisa Sniderman’s The Grieving Project: healing art when the nation needs it.
Lisa Sniderman’s The Grieving Project: healing art when the nation needs it.
The Grieving Project by LIsa Sniderman, Aoede cover-art-cd Artwork, Cover Art, Feeling Sorry For Yourself, Emotions, Original Music, Live For Yourself, Cover
The Grieving Project by Lisa Sniderman
The Grieving Project by LIsa Sniderman, Aoede cover-art-cd
Helpful books on chronic illness – Throughthefibrofog Chronic Pain, Chronic Fatigue Syndrome, Migraine Triggers, Chronic Condition, Chronic Fatigue, Chronic Migraines, Alternative Therapies, Types Of Migraines
Helpful Books on Chronic Illness - Through The Fibro Fog
Helpful books on chronic illness – Throughthefibrofog
Flare, Health Resources, Mental Health Conditions, Pain Management, Self Monitoring, Health Tracker, How To Plan
This item is unavailable | Etsy
20 (Gentle) Date Ideas for People With Chronic Illness Ideas, Chronic Fatigue Symptoms, Chronic Fatigue Syndrome Symptoms, Dating, Chronic Fatigue Syndrome Diet
20 (Gentle) Date Ideas for People With Chronic Illness
20 (Gentle) Date Ideas for People With Chronic Illness
10 Things That Can Inadvertently Hurt People With Chronic Illnesses | The Mighty Chronic Illness Quotes, Illness Quotes, Chronic Disease, Autoimmune Disorder
10 Things That Can Inadvertently Hurt People With Chronic Illnesses
10 Things That Can Inadvertently Hurt People With Chronic Illnesses | The Mighty
Autoimmune Disease, Emotional Health, Chronic Pain Quotes, Respect Life
Life After Pandemic, What Should Not Change?
"Tips For Social Distancing, Quarantine, And Isolation During An Infectious Disease Outbreak" from SAMHSA  Read the PDF at https://www.samhsa.gov/sites/default/files/tips-social-distancing-quarantine-isolation-031620.pdf Mental Health, Health Tips, Health, Behavioral Health, Health Services, Infectious Disease, What Is Social, Behavior, Depression
Taking Care of Your Behavioral Health – Tips for Social Distancing, Quarantine, and Isolation During an Infectious Disease Outbreak
"Tips For Social Distancing, Quarantine, And Isolation During An Infectious Disease Outbreak" from SAMHSA Read the PDF at https://www.samhsa.gov/sites/default/files/tips-social-distancing-quarantine-isolation-031620.pdf
Long, cold, myositis winter: The realities of living with myositis and germs Scouts, Decorating, Scout, Favorite Holiday, Banquet, Secret Life, 10 Things, Gold, Bayeux Tapestry
Long, cold, myositis winter: The realities of living with myositis and germs
Long, cold, myositis winter: The realities of living with myositis and germs
Depression, anxiety and mental illness are burdens that drain you of all hope and motivation. Be kind to yourself especially on the bad days, and hang in there. Click to read, or pin to save and share. ////////// Mental Health / Depression / Anxiety / Mental Illness / Chronic Pain / Chronic Illness / Invisible Illness / Health & Wellness / Self-Awareness / Self-Love #ChronicPain #InvisibleIllness #MentalIllness #depression #MentalHealth Inspiration, Friends, Motivation, Feeling Drained, Be Kind To Yourself, Depression And Anxiety, Feeling Down
Today is Not a Good Day to Make Decisions (and That's Okay)
Depression, anxiety and mental illness are burdens that drain you of all hope and motivation. Be kind to yourself especially on the bad days, and hang in there. Click to read, or pin to save and share. ////////// Mental Health / Depression / Anxiety / Mental Illness / Chronic Pain / Chronic Illness / Invisible Illness / Health & Wellness / Self-Awareness / Self-Love #ChronicPain #InvisibleIllness #MentalIllness #depression #MentalHealth
🎄Have a safe and happy holiday season! We know attending (and maybe hosting) celebrations can be more taxing for people with Myositis. Remember to take care of yourself, take breaks, take naps, remember to enjoy yourself!   We at MSU wish you a happy, safe, and peaceful holiday season, no matter what you celebrate!  #myositis #raredisease #chronicillness #myositisstrong #myositiswarriors Peace, Take Care Of Yourself, Safe, Holiday Season, Take Care, Empowerment, Remember
Myositis Support, All-Volunteer, Patient-Led Nonprofit
🎄Have a safe and happy holiday season! We know attending (and maybe hosting) celebrations can be more taxing for people with Myositis. Remember to take care of yourself, take breaks, take naps, remember to enjoy yourself! We at MSU wish you a happy, safe, and peaceful holiday season, no matter what you celebrate! #myositis #raredisease #chronicillness #myositisstrong #myositiswarriors
"Facing rare disease alone" by Lizzy Finn, #MyositisLIFE.   Lizzy shares her personal experience dating with a chronic, debilitating, and rare disease, #dermatomyositis.   "My life isn’t exciting. So, yeah, don’t date the chronically ill if you’re after fast times and fun living."   #raredisease #myositis #MSU #nonprofit #chronicillness  #myositisWarrior #lonliness #copingwithraredisease #mentalhealth #myositisawareness #InvisibleIllness #Spoonie #autoimmunedisease Caregiver, Rare Disease, Disease, Autoimmune, How Are You Feeling, Ups And Downs
Facing rare disease alone
"Facing rare disease alone" by Lizzy Finn, #MyositisLIFE. Lizzy shares her personal experience dating with a chronic, debilitating, and rare disease, #dermatomyositis. "My life isn’t exciting. So, yeah, don’t date the chronically ill if you’re after fast times and fun living." #raredisease #myositis #MSU #nonprofit #chronicillness #myositisWarrior #lonliness #copingwithraredisease #mentalhealth #myositisawareness #InvisibleIllness #Spoonie #autoimmunedisease
What is life like in month 5 with #dermatomyositis? Well, it's different for every person, but Lizzy shares what it's like for her. Read "Month Five with Dermatomyositis" by Lizzy Finn on #MyositisLIFE.  #patientexperience #myositis #raredisease #autoimmunedisease #MyositisWarriors Heat Therapy, Medical Medium, Lung Infection, Doctor On Call, Facial Therapy, Retail Therapy
Month Five with Dermatomyositis
What is life like in month 5 with #dermatomyositis? Well, it's different for every person, but Lizzy shares what it's like for her. Read "Month Five with Dermatomyositis" by Lizzy Finn on #MyositisLIFE. #patientexperience #myositis #raredisease #autoimmunedisease #MyositisWarriors
The realities of living with #dermatomyositis - It affects more than muscles and skin, and for some the heart and lungs.  It affects how we see ourselves; our self-esteem and body image.  It tricks us, using guilt, into feeling we are a burden on others in our lives.      #raredisease #patientexperience #chronicillness #polymyositis #dermatomyositis #juvenilemyositis #NAM  #antisynthetase #antisynthetasesyndrome #mctd #myositiswarrior Life Quotes, Inspirational Quotes, Sayings, Mindfulness, Appreciate Life, Verses, Faith In God, Favorite Quotes
Unexpected lessons learned while facing my new reality
The realities of living with #dermatomyositis - It affects more than muscles and skin, and for some the heart and lungs. It affects how we see ourselves; our self-esteem and body image. It tricks us, using guilt, into feeling we are a burden on others in our lives. #raredisease #patientexperience #chronicillness #polymyositis #dermatomyositis #juvenilemyositis #NAM #antisynthetase #antisynthetasesyndrome #mctd #myositiswarrior
Organizing the Chronically Ill Chaos, from I.G. Living!  Denna has a family of 4 who all have a #chronicillness. Check out what she has learned and is sharing to help others.  http://www.igliving.com/magazine/articles/IGL_2019-06_AR_Organizing-the-Chronically-Ill-Chaos.pdf  #raredisease #myositis #autoimmune #health System, Medical, Check It Out, Magazine Articles, Chaos
Organizing the Chronically Ill Chaos, from I.G. Living! Denna has a family of 4 who all have a #chronicillness. Check out what she has learned and is sharing to help others. http://www.igliving.com/magazine/articles/IGL_2019-06_AR_Organizing-the-Chronically-Ill-Chaos.pdf #raredisease #myositis #autoimmune #health
spoonies Signs Of Fibromyalgia, Psoriatic Arthritis, Fibromyalgia Pain
Usually, eight signs of fibromyalgia are ignored.#2 is Quite Strange - Your Health Guardian
spoonies
Managing Chronic Pain with Medical Marijuana from I.G. Living! #Myositis can cause #chronicpain. Is medical marijuana right for you? "The term 'medical marijuana' refers to using the whole unprocessed plant or the chemicals contained within it to alleviate symptoms of certain conditions or diseases. The marijuana plant is comprised of more than 100 #cannabinoids (chemicals), each of which have different effects on the body."  #cannabis #pain #endocannabinoids #medicalmarijuana #cbd Cannabis, Medical Marijuana, Medical Cannabis, Cannabinoids, Symptoms, Chemicals
Managing Chronic Pain with Medical Marijuana from I.G. Living! #Myositis can cause #chronicpain. Is medical marijuana right for you? "The term 'medical marijuana' refers to using the whole unprocessed plant or the chemicals contained within it to alleviate symptoms of certain conditions or diseases. The marijuana plant is comprised of more than 100 #cannabinoids (chemicals), each of which have different effects on the body." #cannabis #pain #endocannabinoids #medicalmarijuana #cbd
The Six Stages of Caregiving: Where Are You? A caregiving experience intensifies over time. As you consider our six stages of caregiving, where do you find yourself?  #caregivers #myositiscaregivers #carepartners #carers #illness Family Caregiver, Carer, Development, Freshman, Introduction, Experience, Experiments
The Caregiving Years: An Introduction
The Six Stages of Caregiving: Where Are You? A caregiving experience intensifies over time. As you consider our six stages of caregiving, where do you find yourself? #caregivers #myositiscaregivers #carepartners #carers #illness
I was diagnosed at age 18 while in my first trimester of pregnancy with my son in 1995. The journey to diagnosis was not an easy one, as is for many with myositis. It took many doctors to figure out what was wrong with me. Finally, a perinatologist actually diagnosed me and this is how... #dermatomyositis #myositis #raredisease #MyositisLIFE #chronicillness First Trimester, Weight Gain, Trimesters Of Pregnancy, Diagnosis, Trimester, Doctors
#MyositisLIFE by MSU
I was diagnosed at age 18 while in my first trimester of pregnancy with my son in 1995. The journey to diagnosis was not an easy one, as is for many with myositis. It took many doctors to figure out what was wrong with me. Finally, a perinatologist actually diagnosed me and this is how... #dermatomyositis #myositis #raredisease #MyositisLIFE #chronicillness
Summer is here! Remember to employ a complete sun protection plan. Using an umbrella may not be enough as UV rays bounce off of water and sand, so you can still get sun.   👉See more about sun protection at http://bit.ly/dmandsun #dermatomyositis #sunprotection #summer #myositis Summer, Water, Sun, Sun Protection, Uv Rays, Protection Plans, Protection
Dermatomyositis Sun protection Tips
Summer is here! Remember to employ a complete sun protection plan. Using an umbrella may not be enough as UV rays bounce off of water and sand, so you can still get sun. 👉See more about sun protection at http://bit.ly/dmandsun #dermatomyositis #sunprotection #summer #myositis
Check out 20 Strategies for Fighting Fatigue from Chronic Illness  "Do you forego important daily activities, like showering or work, because you’re just too exhausted to do them?"  #myositis #chronicillness #autoimmune #pain #fatigue Nutrition, Exercises, Health Problems, Exercise, Rheumatologist
20 Strategies for Fighting Fatigue from Chronic Illness
Check out 20 Strategies for Fighting Fatigue from Chronic Illness "Do you forego important daily activities, like showering or work, because you’re just too exhausted to do them?" #myositis #chronicillness #autoimmune #pain #fatigue
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. Cynthia shares, "To be able to use those stairs without assistance was seriously indescribable."    It's great to hear when treatment works!   #dermatomyositis #myositis #myositisLIFE #raredisease #ivig #igtherapy Condo, Cynthia, Treatment, Beach, Seriously, Vacation, Vac, Family
Long time coming…
These are the stairs from the condo that my family and I stayed last week for a vacation at the beach. Cynthia shares, "To be able to use those stairs without assistance was seriously indescribable." It's great to hear when treatment works! #dermatomyositis #myositis #myositisLIFE #raredisease #ivig #igtherapy
Spoon theory - RA Chicks, Rheumatoid Arthritis and Autoimmune Arthritis for rachicks.com Fitness, Spoon Theory, Crohns Disease, Autoimmune Arthritis
Spoon Theory
Spoon theory - RA Chicks, Rheumatoid Arthritis and Autoimmune Arthritis for rachicks.com
Dear ER and Urgent Care Doctor, Treat my symptoms, please…but don’t patronize me    We are hard to diagnose, hard to treat, and hard to keep stable. Being a patient with alternating symptoms feels surreal – but we aren’t making it up! We aren’t attention seeking, we aren’t drug seeking, we are also not psycho-somatic, and we aren’t problem patients, even if we are difficult – medically!  #myositis #myositisLIFE #myositiswarriors #myositisawareness Medical Services, Medical Professionals, Medical Conditions, Medical Supplies, Functional Medicine, Physical Health
Treat my symptoms, please…but don’t patronize me
Dear ER and Urgent Care Doctor, Treat my symptoms, please…but don’t patronize me We are hard to diagnose, hard to treat, and hard to keep stable. Being a patient with alternating symptoms feels surreal – but we aren’t making it up! We aren’t attention seeking, we aren’t drug seeking, we are also not psycho-somatic, and we aren’t problem patients, even if we are difficult – medically! #myositis #myositisLIFE #myositiswarriors #myositisawareness
Many #MyositisWarriors report feeling that as soon as we get one symptom or cluster of symptoms under control, more “pop up.” It can feel like a cruel game of Whack-a-Mole!  #autoimmune #overlap #myositis #myositisLIFE Feelings, Mole, Pop
New symptom whack-a-mole
Many #MyositisWarriors report feeling that as soon as we get one symptom or cluster of symptoms under control, more “pop up.” It can feel like a cruel game of Whack-a-Mole! #autoimmune #overlap #myositis #myositisLIFE
"Save Me" Song about Myositis - #MyositisLIFE #myositis #raredisease #antisynthetase #chronicillness Songs, Youtube, Financial Assistance, Ways To Communicate, News Songs, Me Me Me Song, Set Me Free
"Save Me" by Alyssa Smith
"Save Me" Song about Myositis - #MyositisLIFE #myositis #raredisease #antisynthetase #chronicillness
Let’s not fail to acknowledge the painful feeling of having to sit idly by and watch while your child swims, skates, plays in the snow, kicks the soccer ball, runs on the track, or climbs on the playground. I am so lucky that my husband and nephew are available to enjoy those activities with her #myositis #dermatomyositis #myositisLIFE Coaching, Children, Swimming, #fails, Playground, Skates, Skateboard Parts, Child
Confessions of a Myositis Mom
Let’s not fail to acknowledge the painful feeling of having to sit idly by and watch while your child swims, skates, plays in the snow, kicks the soccer ball, runs on the track, or climbs on the playground. I am so lucky that my husband and nephew are available to enjoy those activities with her #myositis #dermatomyositis #myositisLIFE
Emoji Clipart, Medical Clip Art, Emoji Mask, Smiley, Mask Images, Clip Art, Dog Emoji, Emoticon, Medical Masks
Face with Medical Mask Emoji Clipart
Moving Beyond the Shame of Chronic Illness  #myositis #chronicillness #shame Illness Disease, Rheumatoid Arthritis, Healing, Aging Gracefully
Moving Beyond the Shame of Chronic Illness
Moving Beyond the Shame of Chronic Illness #myositis #chronicillness #shame